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The Czech Home Parenteral Nutrition Registry REDNUP: Comprehensive Analysis of Adult Patients' Data

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KOUDELKOVA Katerina WALDAUF Petr WOHL Petr ŠENKYŘÍK Michal BENES Petr KOHOUT Pavel VEJMELKA Jiri MANAK Jan TESINSKY Pavel NOVAK Frantisek MEISNEROVA Eva FENCL Filip GOJDA Jan

Rok publikování 2024
Druh Článek v odborném periodiku
Časopis / Zdroj Annals of Nutrition and Metabolism
Fakulta / Pracoviště MU

Lékařská fakulta

Citace
www https://karger.com/anm/article/80/3/143/896723/The-Czech-Home-Parenteral-Nutrition-Registry
Doi http://dx.doi.org/10.1159/000538232
Klíčová slova Home parenteral nutrition; Chronic intestinal failure; National registry; Epidemiology
Přiložené soubory
Popis Introduction: Home parenteral nutrition (HPN) is the primary treatment modality for patients with chronic intestinal failure, one of the least common organ failures. This article provides a retrospective analysis of the data collected on HPN patients in the Czech Republic over the past 30 years. Methods: National registry data were collected using a standardised online form based on the OASIS registry (Oley - A.S.P.E.N. Information System) across all centres providing HPN in the Czech Republic. Data collected prospectively from adult patients in the HPN program were analysed in the following categories: epidemiology, demographics, underlying syndrome, diagnosis, complications, and teduglutide therapy prevalence. Results: The registry identified a total of 1,838 adult patient records, reflecting almost 1.5 million individual catheter days. The prevalence of HPN has risen considerably over the last few decades, currently reaching 5.5 per 100,000 population. The majority of patients have short bowel syndrome and GI obstruction, with cancer being the most prevalent underlying disease. Catheter-related bloodstream infections have been the most prevalent acute complication. However, the incidence in 2022 was only 0.15 per 1,000 catheter days. The study also observed an increase in the prevalence of patients on palliative HPN over the last decade. Conclusion: This study presents a thorough analysis of data from the Czech REgistr Domaci NUtricni Podpory (REDNUP) registry. It shows an increasing prevalence of HPN, namely, in the palliative patient group. The sharing of national data can improve understanding of this rare condition and facilitate the development of international guidelines.
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