Publication details
Den vzácných onemocnění
| Title in English | Rare Disease Day |
|---|---|
| Authors | |
| Year of publication | 2024 |
| Type | Workshop |
| MU Faculty or unit | |
| Citation | |
| Description | On February 22, topics related to diagnostics, research and development of drugs for modern therapies were discussed on the premises of the Brno University campus. The program was full of lectures by renowned experts focused on diagnostics, treatment and comprehensive care of patients with rare diseases. Key topics included multidisciplinary approaches to care, innovative diagnostic methods, specifics of patient support and hereditary predispositions to cancer. The workshop entitled "Patient Engagement in Clinical Trials" attracted special attention, which was a successful conclusion to the entire program. Dr. Lenka Součková, representative of the CZECRIN Research Institute and coordinator of the CZECRIN LOCAL HUB at FNUSA, introduced the participants to the use of information from clinical trial registries and explained how direct patient participation in the design and implementation of clinical trials can be beneficial for both sides - scientists and patients. “This approach not only increases the relevance and effectiveness of research, but also promotes transparency and trust between the research community and patient groups,” adds Dr. Součková. |
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