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Informace o publikaci
European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences
Autoři | |
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Rok publikování | 2016 |
Druh | Článek v odborném periodiku |
Časopis / Zdroj | Journal of Neuromuscular Diseases |
Fakulta / Pracoviště MU | |
Citace | |
Doi | http://dx.doi.org/10.3233/JND-160185 |
Obor | Neurologie, neurochirurgie, neurovědy |
Klíčová slova | Duchenne muscular dystrophy; standards of care; corticosteroid treatment; functional status |
Popis | Publication of comprehensive clinical care guidelines for Duchenne muscular dystrophy (DMD) in 2010 was a milestone for DMD patient management. Our CARE-NMD survey investigates the neuromuscular, medical, and psychosocial care of DMD patients in Europe, and compares it to the guidelines. |