Registry of inherited bleeding disorders in Poland - current status and potential role of the HemoRec database

• Autoři: ZDZIARSKA Joanna; CHOJNOWSKI K.; KLUKOWSKA A.; LĘTOWSKA M.; MITAL A.; MUSIAŁ J.; PODOLAK-DAWIDZIAK M.; WINDYGA J.; OVESNÁ Petra; BRABEC Petr; ZAWILSKA Krystyna
• Rok publikování: 2010
• Druh: Článek v odborném periodiku
• Časopis / Zdroj: Haemophilia

Fakulta / Pracoviště MU

• Obor: Onkologie a hematologie
• Klíčová slova: HemoRec; haemophilia; registry
• Popis: We present data collected in HemoRec, an Internet-based platform implemented in 2006 in 15 haemophilia treatment centres in Poland and compare them with the national registry of inherited bleeding disorders established since 1991 at the Institute of Haematology and Blood Transfusion in Warsaw. We also analyse the current status of haemophilia treatment in Poland as well as future perspectives. Data on 1102 patients registered in HemoRec were analysed and compared with 4294 patients in the national registry (status as at 17.08.2009).