Publication details

The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Authors	BERNTORP E. DARGAUD Y. HART D. LOBET S. MANCUSO M.E. D OIRON R. PERRY D. POLLARD D. BERG M. van den BLATNÝ Jan CHAMBOST H. DORIA A.S. HOLME P.A. KACZMAREK R. MANTOVANI L. MCLAUGHLIN P. NANAYAKKARA L. PETRINI P. SANNIE T. LAANE E. MAIA R. DETTORAKI A. FARRELL A. HALIMEH S. RAZA S. TAYLOR S.
Year of publication	2017
Type	Article in Periodical
Magazine / Source	European Journal of Haematology
MU Faculty or unit	Faculty of Medicine
Citation
Doi	http://dx.doi.org/10.1111/ejh.12828
Field	Oncology and hematology
Keywords	haemophilia; genetics; real-life data; laboratory assays; clotting factor concentrates; multidisciplinary
Description	The first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.