The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation

• Authors: BUTTGEREIT T; AULENBACHER F; GUTSCHE A; KOLKHIR P; WELLER K; C Vera Ayala; MAGERL M; FARKAS H; GRUMACH A S; AYGOEREN-PUERSUEN E; BARA N; BEN-SHOSHAN M; BERNSTEIN J; BETSCHEL S; BOUILLET L; CABALLERO T; CANCIAN M; CASTALDO A J; CIMBOLLEK S; COHN D M; CRAIG T; FOMINA D; GELINCIK A; GRIVCHEVA-PANOVSKA V; JINDAL A; KATELARIS C; KESSEL A; KINACIYAN T; LONGHURST H J; MARTINEZ-SAGUER I; RIEDL M; SCHOEFFL C; STAUBACH P; ZANICHELLI A; ZHI Y; H Balle Boysen; FOK J S; LI P H; HAKL Roman; HIDE M; PETER J; MAURER M
• Year of publication: 2024
• Type: Article in Periodical
• Magazine / Source: CLINICAL AND EXPERIMENTAL ALLERGY
• MU Faculty or unit: Faculty of Medicine
• Web: https://onlinelibrary.wiley.com/doi/10.1111/cea.14527
• Doi: http://dx.doi.org/10.1111/cea.14527
• Keywords: ACARE; angioedema; CARE; chronic; registry
• Description: Angioedema (AE) is a paroxysmal, localised and self-limiting swelling of the subcutaneous and/or submucosal tissue, because of a temporary increase in vascular permeability. Recurrent AE is a heterogeneous disease, which is categorised into different types. Clinical and sociodemographic core factors in AE remain insufficiently investigated. A need exists for a large, comprehensive worldwide registry for all types of recurrent AE, applying modern methodologies and parameters from recent scientific knowledge.